Cardiogenic Shock Registry
The
91ÊÓƵ has created the Cardiogenic Shock Registry powered by Get With The Guidelines to improve the quality of care and better understand the clinical manifestations, management patterns, and outcomes in patients presenting with cardiogenic shock to hospitals across the nation. The registry focuses on real-time data from acute care hospitals to help clinicians and researchers understand and provide feedback to healthcare organizations on how to best treat cardiogenic shock patients.
The Cardiogenic Shock Registry builds upon over 20 years of quality improvement and registry experience rooted in the AHA's Get With The Guidelines® platform. Data from this no-cost registry will help inform the larger medical community on how to best treat cardiogenic shock.
The core scientific aims of the registry include:
- Study cardiogenic shock, including diagnosis, treatment, and outcomes among patients in real-world acute care clinical settings throughout the U.S.
- Provide high-quality evidence that helps inform clinicians, researchers, federal agencies, industry and other healthcare stakeholders on best practices for treating cardiogenic shock patients.
- Develop streamlined longitudinal research infrastructure for pragmatic clinical trials and other translational, clinical, and implementation science.
- Create and pilot evidence-based performance metrics for national benchmarking.
- Promote systems-of-care metrics for cardiogenic shock patients that strive for health equity.
National level aggregated, deidentified data will be available to researchers through the 91ÊÓƵ’s , a secure cloud-computing platform to facilitate the research. The Precision Medicine Platform, powered by Amazon Web Services, is a central hub for the cardiovascular and stroke research community to access vast and diverse datasets and cloud-based workspaces that enable state-of-the-art, high-performance computing, analytics and collaboration to accelerate scientific discovery.
Ready to Enroll?
Benefits of Participation
The registry platform is a robust web-based tool for tracking all patients hospitalized with cardiogenic shock. Some features of the tool include:
- On-demand reporting that includes national and regional benchmarks
- Customized downloadable reports for ad-hoc analyses
- Performance dashboards for responsive quality improvement
- First access to innovative enhancements
Data Collection
Data are reported in the 91ÊÓƵ's online registry platform, IRP. The Cardiogenic Shock Registry supports bulk upload of data and interoperability solutions to reduce abstraction burden.
Research Opportunities
Complete the Online Proposal completely with details and suggested tables and charts for the proposed study.​